Huntington's Disease Insights

This week's must-know community updates, latest research & events

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Top Stories

Latest Research

In a recent study, Nunes et al. (2025) explored the use of wearable sensors to assess upper limb function in individuals with Huntington's disease. These sensors were used to gather data on the patients' movements during their daily activities, which provided a more detailed picture of how the disease affects their motor skills outside of a clinical setting.

The study found that the data from the wearable sensors, when analyzed with machine learning techniques, could accurately reflect the patients' motor abilities. This method of assessment could potentially offer a more nuanced understanding of the disease progression and the effectiveness of treatments. The research highlights the potential for wearable technology to enhance the monitoring and management of Huntington's disease by capturing real-world, patient-specific data.

Community News

Huntington's Disease AssociationHuntington's Disease AssociationFeb 28, 2025

🔬✨ Celebrating Rare Disease Day! ✨

🔬 Genetic Alliance UK has launched two powerful initiatives:

📢 Rare Disease Day Report – Highlighting the ongoing unmet needs in the rare condition community and calling for a new UK-wide strategy.

📖 More than you can imagine: An Anthology of Rare Experiences – A moving collection of poetry, stories, and art sharing real experiences from the rare, genetic, and undiagnosed communities.

Huntington's Disease Association Post
Huntington's Disease AssociationHuntington's Disease AssociationFeb 27, 2025

HAPPY ODDS AND SOCKS DAY!

We'd love to see a photo of you, your friends, family and colleagues wearing your silliest odd socks to help raise money for people affected by Huntington's disease.

Send your photos through any of our social media channels or whatsapp them to 07900 922536

Huntington's Disease Society of AmericaHuntington's Disease Society of AmericaFeb 28, 2025

Rare Disease Day is HERE!

As we start celebrating Rare Disease Day, let's stand in solidarity to share our dedication and fight against Huntington’s disease with the world! Together, let's raise awareness as we continue to provide world-class HD resources to families across the country.

We are counting on you to help us reach our goal of $15,000 and unlock the matching gift challenge from an inspiring, anonymous HD family! This means every dollar you contribute today will be doubled, allowing us to raise $30,000 for HDSA programs, research, and family services, and make an even greater impact on the lives of those living with Huntington’s disease and their families.

Use the link below to donate:

https://app.dvforms.net/api/dv/29l94l

Huntington's Disease Society of America Post

Upcoming Events

MAR
13
Virtual Bourbon Tasting Huntington's Disease Society of America    Online

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