Huntington's Disease Insights

This week's must-know community updates, latest research & events

March 26, 2025

New Report: Introduction to Cell Therapy

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The report is available for free online on the AllMyHealth website.

www.allmyhealth.io/reports

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Top Stories

Imagine Artwear Closing on King Street
Carol Supplee is closing her store due to her diagnosis with Huntington's disease, shifting her focus to an online presence and personal projects. She will continue offering her unique artwear online.
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American Society of Gene & Cell Therapy’s Empowering Patients 2025 Summit Recap
Read why patients and caregivers are vital partners in research, clinical trial awareness empowers decision-making, regulators value patient voices, and addressing manufacturing hurdles is crucial for access.
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DNA repair genes linked to Huntington's progression
Researchers found that DNA repair genes contribute to the progression of Huntington's by affecting neurons' vulnerability and the expansion of harmful DNA sequences, which could lead to new therapeutic approaches.
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HDBuzz Celebrates Partnership on Gratitude Day
Families affected by Huntington's in Latin America face extreme poverty and isolation, but organizations like Factor-H provide crucial support and advocacy to improve their lives.
Read More →

Clinical Trials

This is a list of upcoming or ongoing clinical trials that are actively recruiting and have been listed or updated in the last two weeks:

Community News

Huntington's Disease AssociationHuntington's Disease AssociationMar 23, 2025

Today is about taking a moment to appreciate the people who make a difference in the Huntington’s disease community—families, carers, researchers, healthcare professionals, and everyone offering support.

Living with Huntington’s disease isn’t easy, but small moments of kindness, connection, and understanding can mean so much.

💚 To those caring for a loved one—we see you.

💖 To those living with Huntington’s disease—you are not alone.

💚 To those working towards better treatments—thank you.

What are you grateful for today? Let’s share and celebrate the strength of our community.

#HDGrattitudeDay

Huntington's Disease Association Post
Huntington's Disease AssociationHuntington's Disease AssociationMar 20, 2025

On Tuesday, the UK government announced its plans to reform the benefits system to deliver savings of five billion pounds by 2030. We’ve explained below how these changes could impact people living with Huntington’s disease and how you can give your views on the proposed changes.

Read more here https://www.hda.org.uk/news/disability-benefits-reform/

Huntington's Disease Society of AmericaHuntington's Disease Society of AmericaMar 23, 2025

Learn how Factor-H is bringing help for today and hope for tomorrow to the most vulnerable within the HD community, and join us in amplifying this message. Like and Share this post to spread awareness.

🌎🧡#LetsTalkAboutHD #HDSAFamily#HDFamily🧡🌎

Huntington's Disease Society of America Post

Upcoming Events

MAR
28
Corks & Forks event Huntington's Disease Society of America    In Person
APR
24
Virtual course for parents Huntington's Disease Association • Liverpool, United Kingdom    Online