Weekly Spotlight - 14.11.24

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In the News

Huntington Study Group Conference: Day 1 Highlights and Insights

The Huntington Study Group Conference 2024 in Cincinnati highlighted advances in Huntington's disease research. Key discussions included huntingtin-lowering therapies, gene editing, and innovative drug delivery systems. Researchers shared promising data, fostering hope for improved treatments and a brighter future for those affected by Huntington's disease.

Huntington Study Group Conference: Day 2 Highlights and Insights

The Huntington Study Group Conference 2024 Day 2 highlighted the importance of palliative care, early intervention in young HD patients, and challenges in clinical trials. Experts shared insights on improving quality of life, understanding early symptoms, and advancing treatments, fostering hope and support within the HD community.

New Treatment Offers Hope for Huntington's Disease Patients

Scientists have developed a promising new treatment for Huntington's disease using peptide-brush polymers. This innovative approach prevents harmful protein clumping in the brain, showing success in mice without significant side effects. The treatment offers hope for delaying disease onset and reducing symptoms in patients.

BBC Lifeline Appeal Raises Over £39,000 for Huntington's Awareness

The BBC Lifeline Appeal in April 2024 raised £39,504 for the Huntington's Disease Association, significantly increasing awareness. The appeal featured personal stories from Chris, Charlotte, Elaine, Natalie, and Heather. Gratitude was expressed to the BBC and the community for their support, donations, and engagement.

Online Course: Learn from Huntington's Disease Experts

This online course offers a unique chance to learn from Huntington's experts, covering genetics, neuro-psychology, and more. Participants can share experiences and ideas, enhancing their practice. Completing the course provides a certificate from the Huntington's Disease Association. It's a valuable opportunity for professionals to support those affected by Huntington's disease.